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Join our Committee

What's involved?

We have added the role description below just so you have an idea of what is involved. However, what they don’t tell you is how much fun being on the committee actually is! So if you are at all interested in joining us and shaping the work that the group does please get in touch for more information. Or we can put you in touch with a current member.

The roles are all volunteer based.

Committee Member of The Cri du Chat Syndrome Support Group (CDCSSG)

Function: Trustee on the Committee of a Registered Charity Aim: To represent the views of parents/carers with children or adults with Cri du Chat Syndrome and to ensure the good management and direction of the group.


  • To attend committee meetings (approximately 3-4 per year) as well as the AGM (where possible)
  • To contribute to the strategic direction of the organisation and to ensure that we make efficient use of resources
  • To ensure the organisation complies with its governing document and keeps within charity law
  • To communicate with the administrator and other committee members, via email, in between meetings

Time commitment: Approximately 3 hours per month. 

Note: Committee meetings are usually held in Milton Keynes on a Saturday between 11-3. Food is provided. Travel expenses will be met by the group. Attendance via Skype (or alternative) is possible but preference will be given to people who can attend in person.

How to get involved?

Step 1: Sign in to your Supporters account or sign up

Step 2: Accept the challenge

Step 3: email to register your interest or to find out more

Ideal Interests

  • Community Work
  • Raising awareness
  • Supporting families

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